Were you encouraged to abort your Trisomy 13 - Patau Syndrome child?
Forbidden Grief-The unspoken pain of Abortion.
13 facts from SOFT
COMMON PROBLEMS OF BABIES
WITH TRISOMY 18 OR 13
Slow Post Natal Growth
Irritability and Constipation
Low Muscle Tone & Neurological Problems
Common Chronic Illnesses and Problems
Usual Reported Causes of Death
Long Term Survivor
For the Professional
Recommended Medical Care
PROBLEMS OF BABIES WITH TRISOMY 13
Living with Trisomy 13 Miracles in Progress - Growing in
Love (Photos here of Families share their stories, Prayer
Requests, Photos, Natalia) Videos, Support, Resources and
In Loving Memory of These Treasured Trisomy 13 Children
SOFT Support Organization for Trisomy Universal Contact
Information for Local Trisomy Support
Links to family pages offering information & support to
other families Living With Trisomy
Looking for Trisomy Support? All variations for Trisomy 1,
Trisomy 2, Trisomy 3, Trisomy 4, Trisomy 5, Trisomy 6,
Trisomy 7, Trisomy 8, Trisomy 9, Trisomy 10, Trisomy 11,
Trisomy 12, Trisomy 13, Trisomy 14, Trisomy 15, Trisomy 16,
Trisomy 18, Trisomy 19 (still looking for a contact link),
Trisomy 20, Trisomy 21, Trisomy 22
Thank you so much for posting the details of your child's
ordeal with trisomy 13. I came across it while researching
the disorder as part of my 1st year medical studies and was
absolutely touched by it. Being someone that is considering
pediatrics, it is simply inspirational and miraculous. God
Bless you and your daughter, I will keep Natalia in my
images - photos - pictures of Patau Syndrome - TRISOMY 13 FAMILIES supporting
My husband and I lost our little angel Alea Grace in 2006. No
one ever told me these babies live. No one ever gave me hope
from the medical community. Now as I research myself I see that
many do live. It makes me feel jipped, almost jealous in a way.
Thank you for your note to these Dr.’s.
- - -
I just wanted to email you and tell you that your little girl is
beautiful. I am in nursing school and it is beautiful people
like you and her who give me my drive. I am studying for nursing
exams this week. Her life struggles fuel my passion to finish
school and become a nurse. I am studying about feeding tubes and
thought I would search images on google. I came across your
page. Thank you.
I believe in the power of prayer.
I'm a nursing student currently taking a class in Maternity/OB.
I was surfing the net to read more about trisomy 13. I found
your page and had to tell you that your little Natalia is
precious. I couldn't stop smiling when I watched a few of the
video clips. I hope you are doing well. Thank you for your
testimony of God's love.