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children living with Trisomy 13

Natalia at Birth, August 2000 - Click on photos to enlarge

Natalia with mom, two days old. (or new)

Natalia and Mom.  In these early days, I thought these might be the few photos we would have of our little angel.

Trying to adjust, we would say "This is a face only a mother could love." Notice the blue string.  They made a retainer for her feedings so she could use a bottle. Once home, I found we didn't need it.  She drinks beautifully on her own.

Natalia, we were trying to find a good angle for a photo. We were still adjusting to her look.

I covered the bassinet with as much prayer power I could find.  Some of the nurses were worried about me.  They wanted me to be realistic. I was, and she is still here. Praise God!

The kids the night before her Cleft lip repair...They were all
laughing and having fun.

Our beautiful little Natalia, so imperfect on the outside, yet
perfect on the inside.

Aunt Marque feeding her the bottle.  We found if we vented (used her g-tube) while feeding.  It would allow the fluids to  rise in the syringe and helped with with her reflux and spitting up.

Natalia at 1-1/2 years
Christmas 2001